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Who gets born? Now that’s a tough one…
Today, foetuses can be tested for all sorts of possible illnesses, diseases and physical disorders such as cystic fibrosis, Down syndrome and HIV. And most babies in New Zealand do get tested before they are born. However, the pace of scientific and technological progress is such that the range of things we can test for is expanding.
How far should we go with pre-birth testing? Who has the right to decide? What might be the consequences of testing too much or too little?
These are the types of questions tackled by participants in the Bioethics Council’s online deliberation.
Participants were asked to consider 4 approaches to pre-birth testing that were developed by New Zealanders like you during a public issue framing exercise. Some explored these further in online conversations with people from diverse backgrounds. Together, they worked towards collective recommendations for action that will help shape the government’s direction and policies on this issue.
Toi te Taiao: the Bioethics Council would like to thank everyone who participated in this online deliberation – the public response to our call was overwhelming and extremely insightful!
The online deliberation has now ended and we are preparing our report to government. However, we invite you to visit this website, learn about the issues and read what your fellow citizens had to say!
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